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Monday, Dec 11th

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The Coalition for Medical Marijuana New Jersey

A call to action

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Thank you to all who attended this trial yesterday.  They were found guilty.  Pre-sentence reports were mandated (which means the Feds get to crawl into their financial positions to make a recommendation to the judge as to the amount of the fine).  The good news in this is that the judge, while not ruling it out entirely, will most likely not resort to jail time for either defendent.



I received word from Chris Goldstein that it has been postponed from the 23rd to the 27th.  I will keep you up to date on this as i receive information.

What are you doing on the 23rd? Courtroom support in solidarity... think about how you would feel if you were looking at six months. You'd want all of your brothers and sisters to show up in support of your case. Pay it forward.

http://dailyprincetonian.com/news/2013/12/dezarns-trial-for-marijuana-possession-postponed-to-jan-23/

(the following report was pulled from http://www.rawstory.com/rs/2013/09/05/watch-libertarian-state-senate-candidate-gets-arrested-in-philadelphia-at-pro-marijuana-rally/ )

 Libertarian candidate Don DeZarn (Screenshot)

A Libertarian candidate for the New Jersey Senate got himself arrested at a pro-marijuana rally in Philadelphia over the weekend.

Don DeZarn, 46, was arrested for the second time in four months for marijuana possession on Saturday at the monthly SmokeDown Prohibition demonstration. After encouraging the participants of the rally to visit their representatives, DeZarn lit up and smoked a marijuana joint as police stood nearby.

Six other people were issued citations for marijuana use at the demonstration, according toPhilly.com.

The libertarian candidate was first arrested at the SmokeDown Prohibition demonstration in May. DeZarn told The Times of Trenton that his arrests were a form of civil disobedience. He said that he plans to fight the marijuana possession charges in court.

“The theme of my campaign is ‘Legalize Freedom.’ I’m big on a less intrusive government,” DeZarn explained to The Times. “Marijuana legalization ties into the whole message I’m trying to get out to voters, that our government is too big. We’ve got way more important problems we should be dealing with than worrying about a group of 67 people, 10 of which are firing up a joint.”

The official platform of the New Jersey Libertarian Party calls for the repeal of all laws that prohibit the possession and sale of drugs or drug paraphernalia.

Last Updated on Monday, 10 February 2014 12:41

latest news January '14

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Governor Chris Christie has been quoted as saying, "We don't want to be like California or Colorado."  Given the recent news, i would wager he'd like the additional income.  $1mil in sales ON THE FIRST DAY.  At 6%, that would work out to $60,000.00 for the first day's transactions.  

http://www.buzzfeed.com/mbvd/colorados-marijuana-shops-made-more-than-1-million-on-first

If you are mobile and can stand the cold, the new legislative session in NJ begins on January 14th.  We would kindly request your presence in Trenton to show support for those legislators that are paving the way for the medical cannabis program in our state.  Additionally, the regular monthly meeting of the Coalition for Medical Marijuana, NJ, which will be held at the Lawrenceville Library, which is located at 2751 Brunswick Pike LawrencevilleNJ 08648.

also, this may come in handy if you're looking for the medical cannabis program in NJ, with the guidelines: NJ Compassionate Use Medical Marijuana Act

And, finally, an article published by the National Institute of Health: Chronic Pain in Persons With Myotonic Dystrophy and Facioscapulohumeral Dystrophy
Last Updated on Sunday, 23 February 2014 08:19

change.org petition

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 Thanks to Jim Miller for the following text.  I could not have said it any better.  Please take a moment to sign the Change.org petition.

It bothers me greatly that a 15 month NJ child with epilepsy died because of purposeful hurdles placed in medical marijuana patients' way. It bothers me enough to ask my friends to sign this petition. The day after Sabina died, Governor Christie said that advocates of a bill that could have helped her were nothing more than people who wish to make marijuana legal (subtext here, perhaps, is "stoners" - although that is not what he said - you can draw your own inference). I can't tolerate Governor Christie's insult towards the parents of children in NJ who cannabis could help. This should not go unanswered. Out of state signatures are especially important considering Christie's national ambitions.

http://www.change.org/petitions/governor-chris-christie-allow-minors-access-to-compassionate-care

Third ATC opens...

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marijuana.JPG

The headline reads: third dispensary opens in NJ.  A bit misleading, wouldn't you agree?  While it is technically true that three dispensaries have opened, there are only two currently filling the needs of patients statewide.

http://www.nj.com/politics/index.ssf/2013/11/third_medical_marijuana_dispensary_in_nj_now_accepting_patient_registrations.html

What about the children?

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 http://www.ladybud.com/2013/10/21/interview-with-heather-jackson-executive-director-of-realm-of-caring/
(
used with permission from LadyBud - visit their site for the full article and associated links)
Interview with Heather Jackson, Executive Director of Realm of Caring

Interview with Heather Jackson, Executive Director of Realm of Caring

On October 4, 2013, 10-year-old Zaki Jackson celebrated his “One Year Seizure Free Anniversary.”

Zaki stopped having seizures when he began using Charlotte’s Web, a high-CBD strain of medical cannabis that his mother, Heather Jackson, credits for saving her son’s life.

Yesterday, friends and family gathered in Colorado Springs for a big party to rejoice in Zaki’s good health, and to raise funds for the Realm of Caring, a Colorado-based foundation that helps families obtain special strains of medical cannabis for their specific health care needs.

Heather took a break from celebrating to chat with Ladybud about her son, her role at Realm of Caring, and why she wants the world to know about Charlotte’s Web.

Heather Jackson

Heather Jackson

Ladybud: What was life like for Zaki before he started on Charlotte’s Web?

Heather Jackson: Zaki has a rare severe form of epilepsy called Doose Syndrome. His seizures started at 4 months old (and he’d) had 500,000 seizures by the time he was 5 years old. Zaki has had peaks and valleys over the years, like many children with a catastrophic epilepsy diagnosis. Just before we started CBD, he was in a valley, having an average of 200 seizures a day as well as having seizures in which he stopped breathing. He was receiving hospice palliative services.

LB:  How did you first learn that medical cannabis could be helpful for Zaki?

HJ: The catastrophic epilepsy community is pretty close knit. I learned of cannabis as an option when I heard of Jason David’s story with his son Jayden. And I remember thinking, this isn’t just some story on the internet, I know them. This is when I started researching, like I had done for all previous treatment options we used for Zaki.

LB: How did you first connect with the Stanley brothers and Realm of Caring?

HJ: Actually that is an interesting story. I heard about them through our social worker through the hospice waiver my son was on. Her position would not allow her to make recommendations, so she carefully asked if we had thought about it as an option. I told her I had thought a lot about it, and had been talking to our doctor about it for about 4 months at that time. She connected me with many resources, the lab, and other families. It was providential. I will always be thankful to Ms. Cate for being brave enough to say something.

LB: And now you work for the Realm of Caring?

HJ: I am working for the Realm of Caring as the Executive Director. I came on about 8 months ago when the volume was picking up quite a bit. It is really fun because nothing like this exists; we are truly inventing the wheel.  I don’t think I could find anything more important to do with my life after how life-altering this has been for my family.

Charlotte's Web

Charlotte’s Web

LB: We’ve heard about a lot of families moving to Colorado to get Charlotte’s Web for their children. Can you tell us a little about that process?

HJ: It is so unfortunate that families have to pull up roots and leave family, friends, and their medical services to seek this as therapy. But they are doing it! We have 85 families that have done that now, with over 200 wanting to. There is such a wonderful community waiting here for them. The thing that warms my heart the most is the level of commitment and love that everyone has for one another.

Once a family makes the decision to start the Realm of Caring program, they should get on the wait list, they must establish residency, seek two physician recommendations for their red card, and establish all of their follow up care with neurology. But there is much more! They have to learn to navigate a whole new state, services, neighborhoods, schools, therapies, and specialists. It is not easy at all. But they have what I call an “end of earth kind of love,” for their child and they are figuring it out with help from families who have done it themselves.

The heartbreaking part and the hardest part of what I do is having to talk to the families who cannot do it. They just can’t. And the families who can do it, are medical hostages here in CO because if they leave with their child’s life saving medication, they are drug traffickers! It’s ridiculous and wrong on so many levels. I believe it is a human rights issue. I am hopeful this will change. It has to. Legislation has to change!

LB: How did you and your family celebrate Zaki’s 1 year seizure-free anniversary?

HJ: It only seemed fitting that we had a big bash! We have been calling it “Zaki’s seizure free birthday.” Zaki asked, “how old momma?” I told him he was “One! Incredible.” We invited the community to come celebrate with us. We received a $10,000 match for the Realm of Caring, so we are working hard to raise at least that much!

There is no paid staff at the Realm of Caring. This is terrific, but not a sustainable model. They need money to be able to continue their life changing work, and to help more families as well as put systems and infrastructure in place to bring this treatment to more people who need it, and do not have the time to wait for it.

LB: What would you say to people who still oppose medical cannabis?

HJ: I would say that I understand how you feel, I understand there is a lot of propaganda and myths surrounding the plant. But I would ask them to take a look at our journey and have an open mind. If they are inclined, please look at the research. There is actually a ton of it!

Have them understand that we aren’t trying to make a statement. We have no agenda. We were simply trying to save Zaki’s life, and give him a better quality of life. His overwhelmingly positive response is making the statement. We then had an obligation to tell the story. We are just trying to spread the word. Don’t walk a mile in my shoes. Simply hold your child one time while they seize and turn blue because they have stopped breathing. Tell me, what would you do if it were your child?

LB: How can people support/donate to Realm of Caring?

HJ: Donations are tax deductible through a fiscal sponsorship through this link.  Please help us meet our 10k match.

 

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